The people behind the illness

ME and fibromyalgia doesn’t mean gradually getting more tired and in pain throughout the day or having occasional days but it means pushing through the exhaustion and pain several times a day. I have to find something in myself to push through and get out bed, to answer the phone, to get to lectures. It means constantly making compromises and never being a good girlfriend, sister or daughter because you always end up not calling someone on their birthday or missing the party, not getting someone a card, never replying to the text or phone call, missing the presentation. Constantly, constantly, constantly apologising and canceling. Having a chonic illness means you’ll never be a woman of your word but always unreliable. You’re always trying to make the decision between being the person who never accepts an invitation or being the person who never turns up. I am so lucky to have a partner who loves me despite the birthday cards and parties he never got. I’m lucky enough to have a sister who loves me despite never getting to be the one who takes the lift instead of the train. A best friend who continues to be just that despite all the unanswered texts, emails, letters, calls, despite my absence when she needs me and despite my never having visited her once, although she travels hours to visit me. I am lucky enough to have parents who will look after me like a toddler when what they really need is for me to be strong for them.

Thank you.



You get that tingly feeling in your belly when you’re favourite song comes on the radio or during a film. I love singing along and dancing to anything, even better when I know the words. When I was in school, I used to make CDs for me and my best friend to sing along to and dance to in her car.

Some of our favourites are:

Build Me Up Buttercup- The Foundations

Stronger- the Kayne West version

Thou shalt always kill-  Dans le sac vs. Scroobius Pip

New Shoes- Paolo Nutini

Do you dance around the house? What’s your favourite song?